Note: I modelled this after an essay
written by Kathy Lyn Harris titled “Dear Moms of Adopted Children.” I first read it on Thursday
and then shared it among my friends. It’s been on my mind ever since. (Kathy’s
post was inspired by Lea Grover whose essay titled, “Dear
Less-Than-Perfect Mom” ran in the Huffington Post on April 30th).
Kathy’s post made me think about moms like me whose path to motherhood was complicated
by premature birth
Dear Mom of a Premature Child,
I met you in the NICU. I met you through Early Intervention.
I met you at my daughter’s school. You were my massage therapist. You are my
neighbor. I met you on purpose. I met you by accident.
I knew you right away. I recognized the uneasiness,
the fear, the wondering. Because
everything about your situation was out of your control. You could not stop the
premature birth of your child.
Maybe someone told you it was in God’s plans for you to have
a premature child and God never gives us more than we can handle. Maybe someone told you about what happened to their friend’s preemie. Maybe they told you there
was nothing to worry about because medicine has come so far- your child will be
fine. Maybe they were wrong. Maybe they
were right. Maybe you ignored them.
Maybe you were on bed rest for months. Maybe you carried
twins. Maybe your water broke early for no reason. Maybe a car accident induced
early labor. Maybe you conceived through fertility treatments. Maybe conception
Your child was born eleven weeks early. Fourteen weeks
early. Sixteen weeks early. Your child was early but healthy. Your child was
born with a heart condition. Your child was born with her intestines outside
her body. Your child died after only two days. Your child spent her first six
months in a hospital. Your child nearly died on Mother’s Day. Your child went
home after only four weeks.
I know about all the books you read. The ones everyone reads
that tell us what to expect- but you never expected this. You also read about
dealing with lengthy hospitalizations, disabilities caused by premature birth. Facing
the death of a preemie. About cognitive
delays, language deficiencies. About preemie support groups.
I know how you got up every day and faced that day with
determination. How you kangarooed your son for hours. How you loved your daughter from behind glass. How you flinched
every time the alarms sounded to alert nurses that your son stopped breathing.
How you held your breath as you watched him turn blue and prayed the nurses could
get him to breathe again.
I’ve seen you in front of the hospital watching the pregnant
woman wishing you were still pregnant. I know the pain of losing the future of
a full-term pregnancy. The loss of a “normal” birth. The scars of a classical
C-section you never wanted to have. The pain of having to pump your breast milk
for months on end instead of nursing your child who lays there in an incubator
fed through a tube.
I know the fear of loss. I’ve seen you look down at your newborn
infant, wondering if she’ll survive.
I know the never-ending tests. Head ultrasounds, eye exams,
heal sticks every day. You avoided caffeine your entire pregnancy only to learn
your preemie was being pumped with caffeine through his IV.
I know about the friends who don’t know what to say to you. “Congratulations?”
But your child may not survive. This child before you who is still covered in
lanugo hair and has undeveloped nipples.
And then, for many of you, I watched the day your child went
home for the first time, 7 weeks, 14 weeks, 22 weeks after birth. You brought
him home, happy to have your child in your arms, yet afraid he might stop
I know that bliss laced with fear. That guarded, yet hopeful
moment when you were finally together as a family.
I’ve watched you cringe as others brush off your lingering anxieties
only to tell you everything is fine because, “Look at her now!” Everything’s
wonderful. Except it isn’t. You were traumatized. You still live in fear.
I’ve seen you worry when your child is evaluated for Early
Intervention. Is her language delayed? Will he ever walk? Is he learning disabled?
You dutifully complete every task, exercise, language activity the experts give
you hoping to avoid long-term disability. You cry yourself to sleep at night
I’ve seen you answer all of the tough questions, the
questions that have to do with why her head is shaped funny, or why he needs a hearing
aide, or why she can’t walk even though she’s already two. I’ve watched you
field perhaps the hardest question of all, “Why was she born so early?” A
question you cannot answer because you still blame yourself for the betrayal of
a body that couldn’t complete a basic human function.
But most of all, I want you to know that I’ve watched you
with your child. Seen your fierce determination to get him the services he
needs. Watched you read aloud to her every single day since she entered this
world. Watched you help him transition into school life with the least
difficulty possible. Watched you help her learn to jump after hours and hours
of practice so she can play with the other kids.
I’ve seen your love. Your undeniable, mama-bear love. You will
do whatever you need for your child. You love this child with an intensity no-one
can break. You are the mom of a preemie and you are fierce.
Happy Mother’s Day.
Today, I had the most wonderful day that I’ve had in a long time (Professionally speaking. Publishing is a tough business, people). First, I got to see Hovey Clifford, a retired WHOI scientist read Flying Deep to a packed room @woodshole_ocean Science Discovery Center. What a joy this was for me! I was a little concerned when I saw a crowd of preschoolers sitting right down front. (My book is meant for slightly older kids). But Hovey is a natural reader who knows how to engage kids. Also, most of those kids are the children of WHOI employees. They know their ocean stuff! Many of them already own #FlyingDeep. At various points, they called out things related to the pages of the book such as “There’s a shark!” Or “Dumbo Octopus!” And my favorite: “They pee in a bottle!” One child even said the next line of the book before Hovey read it. This is an author’s dream come true.
You’d think my day couldn’t get any better, but you’d be wrong. After I signed books for some kids at the reading and two cases of books for the science center shop, I went to a meeting with 4 WHOI scientists/researchers to talk about a possible book project. The short summary: they told me they’re excited to work with me. (And I’m, you know, mildly excited to work with them. Haha. More like ecstatic!) So, what’s next for me? Lots of reading, researching, and likely emailing with them to nail down exactly what this book should be. I am ridiculously excited to get started. #OceanScience #STEM #STEAM #OceanResearch #ResearchLife
First fiddleheads of the season. #nature
Last night was The Old Rochester Regional School District’s “Night of Jazz,” a concert that features the Junior and High School Jazz Bands and the High School Chorus. Like every show performed by our music departments, this one was fabulous. I’m so thankful that we have a district that values and celebrates music education. Both of my children have benefitted from having outstanding music teachers from Kindergarten on up. Watch for Director Mike Barnicle’s toddler to appear in the last video. He just wanted to be with his dad. I love the way Mr. Barnicle simply scooped him up and kept on directing #parenting. (For those who don’t know, my son @dantecusolito is on the guitar). #supportschoolmusic #livemusic
#RochesterLife: Captain Bonney’s. Gorgeous weather this weekend meant our first trip for ice cream. They reopened a week and a half ago but this was our first trip. Yummy!
I don’t know why, but my parents’ chickens have been laying a lot of double-yolked eggs lately. This is the second and third one we’ve gotten today. (That’s 3 for 3). #farmfresheggs
When it’s your son’s 17th birthday and his dad makes a special trip for cannolis. 😋
Check out this lovely collection of instruments @southcoastlessons in New Bedford, MA. (Swipe for more.) If you don’t already know about all of the cool stuff they offer, you should check them out. (Private lessons, group lessons, free public monthly sessions and so much more). Find them on Facebook for details about upcoming events. #supportlivemusic #livemusic
Today’s nature break. #getoutside #nature.
The weather today was spectacular (65 F, 18C) and sunny. I walked to my favorite frog pond (read: vernal pool) with my friend @alison.noyce and soaked in nature’s orchestra. (Turn on your sound). While I was gone, my daughter cleaned out the porch and then we ate lunch in the porch. In March! The rest of the afternoon was filled with yard work- raking out beds, mulching, etc. Now I’m exhausted. #nature #getoutside
When I’m having a difficult time, getting out in nature always makes me feel better. Some days are harder than others to get myself out there. Sometimes I have to force myself. But I’m always glad when I’ve gone.
This afternoon, I walked along wooded trails, listened to wood frogs clucking in a vernal pool, sat on a bench made by my kids 3 years ago, and watched whitecaps on the lake. All of this put me in a better frame of mind to talk to a group of teachers at “Educator’s Night” at a local indie tonight. #nature #getoutside