Note: I modelled this after an essay
written by Kathy Lyn Harris titled “Dear Moms of Adopted Children.” I first read it on Thursday
and then shared it among my friends. It’s been on my mind ever since. (Kathy’s
post was inspired by Lea Grover whose essay titled, “Dear
Less-Than-Perfect Mom” ran in the Huffington Post on April 30th).
Kathy’s post made me think about moms like me whose path to motherhood was complicated
by premature birth
Dear Mom of a Premature Child,
I met you in the NICU. I met you through Early Intervention.
I met you at my daughter’s school. You were my massage therapist. You are my
neighbor. I met you on purpose. I met you by accident.
I knew you right away. I recognized the uneasiness,
the fear, the wondering. Because
everything about your situation was out of your control. You could not stop the
premature birth of your child.
Maybe someone told you it was in God’s plans for you to have
a premature child and God never gives us more than we can handle. Maybe someone told you about what happened to their friend’s preemie. Maybe they told you there
was nothing to worry about because medicine has come so far- your child will be
fine. Maybe they were wrong. Maybe they
were right. Maybe you ignored them.
Maybe you were on bed rest for months. Maybe you carried
twins. Maybe your water broke early for no reason. Maybe a car accident induced
early labor. Maybe you conceived through fertility treatments. Maybe conception
Your child was born eleven weeks early. Fourteen weeks
early. Sixteen weeks early. Your child was early but healthy. Your child was
born with a heart condition. Your child was born with her intestines outside
her body. Your child died after only two days. Your child spent her first six
months in a hospital. Your child nearly died on Mother’s Day. Your child went
home after only four weeks.
I know about all the books you read. The ones everyone reads
that tell us what to expect- but you never expected this. You also read about
dealing with lengthy hospitalizations, disabilities caused by premature birth. Facing
the death of a preemie. About cognitive
delays, language deficiencies. About preemie support groups.
I know how you got up every day and faced that day with
determination. How you kangarooed your son for hours. How you loved your daughter from behind glass. How you flinched
every time the alarms sounded to alert nurses that your son stopped breathing.
How you held your breath as you watched him turn blue and prayed the nurses could
get him to breathe again.
I’ve seen you in front of the hospital watching the pregnant
woman wishing you were still pregnant. I know the pain of losing the future of
a full-term pregnancy. The loss of a “normal” birth. The scars of a classical
C-section you never wanted to have. The pain of having to pump your breast milk
for months on end instead of nursing your child who lays there in an incubator
fed through a tube.
I know the fear of loss. I’ve seen you look down at your newborn
infant, wondering if she’ll survive.
I know the never-ending tests. Head ultrasounds, eye exams,
heal sticks every day. You avoided caffeine your entire pregnancy only to learn
your preemie was being pumped with caffeine through his IV.
I know about the friends who don’t know what to say to you. “Congratulations?”
But your child may not survive. This child before you who is still covered in
lanugo hair and has undeveloped nipples.
And then, for many of you, I watched the day your child went
home for the first time, 7 weeks, 14 weeks, 22 weeks after birth. You brought
him home, happy to have your child in your arms, yet afraid he might stop
I know that bliss laced with fear. That guarded, yet hopeful
moment when you were finally together as a family.
I’ve watched you cringe as others brush off your lingering anxieties
only to tell you everything is fine because, “Look at her now!” Everything’s
wonderful. Except it isn’t. You were traumatized. You still live in fear.
I’ve seen you worry when your child is evaluated for Early
Intervention. Is her language delayed? Will he ever walk? Is he learning disabled?
You dutifully complete every task, exercise, language activity the experts give
you hoping to avoid long-term disability. You cry yourself to sleep at night
I’ve seen you answer all of the tough questions, the
questions that have to do with why her head is shaped funny, or why he needs a hearing
aide, or why she can’t walk even though she’s already two. I’ve watched you
field perhaps the hardest question of all, “Why was she born so early?” A
question you cannot answer because you still blame yourself for the betrayal of
a body that couldn’t complete a basic human function.
But most of all, I want you to know that I’ve watched you
with your child. Seen your fierce determination to get him the services he
needs. Watched you read aloud to her every single day since she entered this
world. Watched you help him transition into school life with the least
difficulty possible. Watched you help her learn to jump after hours and hours
of practice so she can play with the other kids.
I’ve seen your love. Your undeniable, mama-bear love. You will
do whatever you need for your child. You love this child with an intensity no-one
can break. You are the mom of a preemie and you are fierce.
Happy Mother’s Day.
Today is a pretty spectacular fall day. #NoFilter
Want to learn to play guitar, ukulele or bass? With the changes in season come changes in schedule. My son @dantecusolito has new openings available for lessons. All lesson happen @southcoastlessons @hatchstreetstudios in New Bedford, MA. Email firstname.lastname@example.org to book. Please spread the word.
My last “fresh sauce” of the season. Everything in the sauce was grown within 5 miles of here. Onions and garlic from Cervelli Farm. Tomatoes, eggplant, basil, oregano, and fennel seed from our garden. We still have loads of tomatoes in the garden, but they’re all green, and I don’t think many more will ripen. Not enough for a whole sauce, anyway. I used the last scrappy bits of basil tonight, too. It’s the official end of the gardening season here. #RuralLife #gardening
Maybe I shouldn’t have added that deep purple carrot to my chicken, veggie, tortellini soup. It looks kinda weird, though it tastes the same as always.
@kimberlygriffithpsyd maybe you’d like some?
So... I harvested a “few” peppers today. 😳 I’m not sure how my family of 4 will manage to eat all of them. #naturesbounty #gardening
I just learned that this beautiful kinetic installation in Custom House Park, New Bedford will be coming down on Tuesday. #silvercurrent by #patrickshearn
Local friends, you really should check it out if you haven’t. If you go downtown today, you can attend the Bow to Stern Festival, too.
Image by @karenromanoyoung. Shared with permission.
On this day of #schoolstrike4climate
I stand with students and #kidlit4climate Thank you to everyone who’s out marching. I’m not marching. Instead, I’m contributing by putting my writing skills to work writing a time-sensitive proposal for a book project that will highlight cutting edge science being done by @woodshole_ocean. WHOI’s expansive, dynamic, 6 year research project will expand our knowledge of the ocean twilight zone. One key focus of the research: the role of the twilight zone and its inhabitants on the global carbon cycle. #globalclimatechange #globalclimatestrike #climatechangeisreal
More pics from the Massachusetts Book Awards today at the Massachusetts State House. Thank you @masscenterforbook for a lovely day. The weather was gorgeous, so my walk from South Station and back was perfect. The last image is my final stop on the Greenway where I sat for a while and fleshed out more ideas for my WIP. (Yep. Of course I had my notebook in my bag. You never know when a great idea will strike). Tagging @jyolen @heidieys
One of my favorite pics from the @masscenterforbook awards at the Massachusetts State House today. (My other pics are vertical photos so they’ll require a second post). I was honored to have #FlyingDeep recognized and glad to spend some time with #KidLit friends. #literacy
@skortch @heatherlangbooks @jemorrisbooks